Privacy Notice
IDS-TILDA is hosted by the Trinity Centre for Ageing and Intellectual Disability (TCAID). The aim of TCAID is to address the inequalities and health disparities that occur for people with intellectual disability as they age.
The Intellectual Disability study (IDS-TILDA) is hosted by the Trinity Centre for Ageing and Intellectual Disability (TCAID) in Trinity College Dublin, The University of Dublin (the “University”) of College Green, Dublin 2, Ireland.
IDS-TILDA is a long-term study supported by the Department of Health and funded by the Health Research Board. Its main objective is to understand the health and wellbeing for people with an intellectual disability aged 40 and over. This study is the first of its kind in Europe, and the only study able to directly compare the ageing of people with an intellectual disability with the general ageing population (information collected by the Irish Longitudinal Study on Ageing) (TILDA).
Information collected by IDS-TILDA will help to inform health and social care policies for people with an intellectual disability. It provides a comprehensive and accurate picture of the health, social and economic situation of older persons with an intellectual disability in Ireland.
Longitudinal studies such as IDS-TILDA require large amounts of data over long periods of time to achieve their purpose. The information that all IDS-TILDA participants have provided since it began over 13 years ago, have contributed to this invaluable data resource.
IDS-TILDA fully respects your right to privacy and actively seeks to protect your privacy rights. Any personal information which you share with IDS-TILDA will be treated with the highest standards of security and confidentiality, in accordance with Irish and European Data Protection laws.
The privacy notice seeks to explain the following:
• How we collect and use your personal data
• How we store and secure your personal data
• The purpose and legal basis for collecting your personal data
• Your rights
• Details of third parties with whom we share your personal data
The full privacy notice is available here.