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Eilish Burke
Ussher Assistant Professor, School of Nursing & Midwifery

Biography

Éilish Burke RGN RNID BNS MSc.PhD. completed her PhD in March 2016, during her studies she achieved a number of awards including Postgraduate of the year 2016 and was appointed as the Ussher Assistant Professor in Ageing and Intellectual Disability, Trinity College Dublin in September 2016. Éilish originally trained as a general nurse and through her volunteer work with the Special Olympics she developed an interest in intellectual disability (ID). She trained as a Registered Nurse Intellectual Disability and has worked in the field for over 25 years. Éilish completed her Masters in Trinity and joined the IDS-TILDA team as a research assistant in 2010. Éilish served as Project Manager from 2011-2016, whilst continuing to play an integral role in IDS-TILDA she is now Ussher Assistant Professor in Ageing and ID in the School of Nursing with her research based with IDS-TILDA. Her specific area of interest is bone health although she has a broad interest in all health issues that impact on ageing. She has recently been appointed as the Associate Director of the new Trinity Centre for Excellence in Ageing and Intellectual Disability. She is a member of the International Association for the Scientific Study of Intellectual and Developmental Disability, as well as the International Osteoporosis Foundation and the Irish Osteoporosis Society. Her related research interests include physical health and well-being, inclusionary methods of healthcare screening and healthcare engagement, accessible health promotion and promoting research involvement of people with ID. She is the Director of a new interdisciplinary master's course in ageing and intellectual disability currently under development. During her research development, she designed and developed an accessible format and approach to engaging people in health assessments. She is a committed teacher and has been involved in education throughout her career. She currently teaches on the undergraduate nursing ID programme and the Master's course in the National Institute of Intellectual Disability. Éilish has a number of publications and has disseminated widely through national and international conferences.

Publications and Further Research Outputs

Peer-Reviewed Publications

Burke, E., McCarron, M, Ageing and the changing needs of people with an intellectual disability, International Occupational Therapy Group from Singapore, St James Hospital, February, 2017 Invited Talk, 2017

Ryan, J., McCallion, P., McCarron, M and Burke E., Overweight & Obesity, Health and Wellbeing among Menopausal Women with an Intellectual Disability through the Wellness Model Lens: Results from Wave 2 IDS-TILDA., Bridging the gap: From evidence to improved health from persons with intellectual and developmental disabilities Health SIRG 2017 , Belfast, June 2017, 2017 Conference Paper, 2017

Burke, E., McCarron, M.,, Physical health and older adults with intellectual disabilities, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017 Oral Presentation, 2017

Burke, E., McCallion, P., McCarron, M, "Men's Bones Matter Too; Fracture risk and associated osteoporosis among older men with intellectual disability, Health SIRG 2017 , Belfast, 19th June, 2017 Poster, 2017

Burke, E., McCarron, M, IDS-TILDA, An overview from the beginning, Research Study Day, Dublin, January, 2017, St John of God Invited Talk, 2017

O'Connell J., O'Dwyer, M., Burke, E; Henman, M., McCarron, M., McCallion, P;, Drug Burden Index and Physical Function Measures in Older Adults with Intellectual Disabilities, ESCP International Symposium , Germany, 9th - 11th October, 2017 Conference Paper, 2017

King, E., Okodogbe, T., Burke, E., McCarron, M., McCallion, P., O'Donovan, MA, Activities of daily living and transition to community living for adults with intellectual disabilities, Scandinavian Journal of Occupational Therapy, 1, (1), 2016, p1 - 7 Journal Article, 2016 DOI

Burke, EA., Walsh, JB., McCallion, P. and McCarron, M., ONE SIZE DOES NOT FIT ALL, MAKING REASONABLE ADJUSTMENT TO FACILITATE THE ENGAGEMENT OF PEOPLE WITH INTELLECTUAL DISABILITY IN OBJECTIVE HEALTH ASSESSMENT., IASSIDD Congress, Melbourne, Australia, , Melbourne, Australia, 15th - 19th August, , 2016 Poster, 2016

Burke, EA., McCarron, M., McCallion, P, Prevalence and predictors of osteoporosis risk among older adults with intellectual disability n Ireland, IASSIDD Congress, Melbourne, Australia, 15th - 19th August, 2016 Meeting Abstract, 2016

Burke, E., McCarron, M, Bone health and older adults with intellectual disability., Research Study Day, Dublin, November, 2016, Daughters of Charity Invited Talk, 2016

Burke, E; McCallion, P., Walsh, J.B., McCarron, M., An exploration of the bone health of older adults with an intellectual disability in Ireland, Journal of Intellectual Disability Research, 2016 Journal Article, 2016 TARA - Full Text DOI

Burke, EA., Carroll, R., Walsh, JB., McCarron, M., McCallion, P,, The Feasibility of Utilising Quantitative Ultrasound as a Method of Objectively Measure in Bone Status among Older Adults with Intellectual Disability., IASSIDD Congress, Melbourne, Australia,, Melbourne Australia, 15th - 19th August,, 2016 Poster, 2016

Caoimhin MacGiolla, Phadraig., McCarron, M, Why do older adults with intellectual disabilities not wear dentures, 23rd iADH Congress in conjunction with SCDA 28th Annual Meeting, Chicago, 16th April, 2016 Poster, 2016

Burke, EA., McCarron, M, Unlocking the determinants of ageing and bone health among adults with an intellectual disability, Disability Research Seminar, Dublin, 3rd November, 2015 Invited Talk, 2015

MacGiolla Phadraig C., McCarron M. , Burke E., Cleary E., McGlinchey E., McCallion P., Nunn., J. , Total tooth loss and complete denture use in older adults with intellectual disabilities in Ireland, Journal of Public Health Dentistry, 75, (2), 2015, p101 - 108 Journal Article, 2015

Burke, EA., McCarron, M, The lives and needs of older people with learning disabilities in Ireland, The BILD 2015 International Ageing Well Research and Practice Conference, Aston University, Bermingham, 4th December, 2015 Invited Talk, 2015

O'Dwyer, M., Belton, A, Burke, E., Mulryan, N., Pekar, J., McCallion, P, McCarron, M., Henman, M, Antipsychotics in older people with ID: Prevalence and associated risks, IAGG-ER 8th Conference, Dublin, 25th April, 2015 Oral Presentation, 2015

Mac Giolla, Phadraig C., Burke, E., McCallion, P., McGlinchey, E., Nunn, J., McCarron, M, Dental attendance among older adults with intellectual disabilities in ireland, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015 Poster, 2015

Burke, E., McCallion, P., Walsh, JB., McCarron, M, The Bone Status of Adults with Intellectual Disability: Results from the Second Wave of IDs-TILDA, IAGG-ER 8th Conference, Dublin, 23rd April, 2015 Poster, 2015

Burke, E., McCarron, M., Walsh, JB., McCallion, P, The feasibility of utilising quantitative ultrasound as a method of objectiviely measuring bone status among older adults with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 23rd April, 2015 Poster, 2015

Burke, EA., McCallion, P., Walsh, JB., McCarron, M, Examining the bone health of older adults with intellectual disability, Irish Gerontological Society PhD Conference, Education Centre, Our Lady's Hopice, Harolds Cross, Dublin 6, 2015 Oral Presentation, 2015

Burke, EA.,, Health, well-being and community participation: IDS-TILDA, Camphill Community National Conference, Kilkenny, July, 2015 Invited Talk, 2015

Burke, EA., McCarron, M, The IDS-TILDA Study - An overview with focus on speech and language, Masterclass for speech and language master students, School of Speech and Language, Trinity College, 9th October, 2015 Oral Presentation, 2015

Burke, EA., McCallion, P., Walsh, JB., McCarron, M, An investigation into the bone health and bone quality among older adults with an intellectual disability in Ireland., Annual Medical Conference, Irish Osteoporosis Society , Trinity College, 31st October, edited by Dublin , 2015 Oral Presentation, 2015

Burke E, McCarron M, Carroll R, McGlinchey E, McCallion P, What it's like to grow older: the aging perceptions of people with an intellectual disability in Ireland., Intellectual and developmental disabilities, 52, (3), 2014, p205-19 Journal Article, 2014 DOI

Burke, E., McCarron, M., Swinburne, J., McGlinchey, E., Carroll, R., McCallion, P, What it's like to grow older: The ageing perceptions of people with intellectual disability in Ireland. , Journal of Applied Research in Intellectual Disability, 52, (3), 2014, p205 - 219 Journal Article, 2014 DOI

MacGiolla Phadraig, C.M.G., Burke, E., Mccallion, P., (...), Nunn, J., Mccarron, M. , Dental attendance among older adults with intellectual disabilities in ireland , Special Care in Dentistry, 34, (6), 2014, p265 - 272 Journal Article, 2014 DOI

McCarron M, O'Dwyer M, Burke E, McGlinchey E, McCallion P, Epidemiology of epilepsy in older adults with an intellectual disability in Ireland: associations and service implications., American journal on intellectual and developmental disabilities, 119, (3), 2014, p253-60 Journal Article, 2014 DOI

Burke, E., McCarron, M., McCallion, P. , The Silent Thief of Bone: Developing a baseline picture of the bone health of adults with an intellectual disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013 Meeting Abstract, 2013

McGlinchey, E., McCallion, P., Burke, E., McCarron, M., Examining the area of Employment for Adults with an Intellectual Disability, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013 Meeting Abstract, 2013

McCallion P, Burke E, Swinburne J, McGlinchey E, Carroll R & McCarron M, Influence of environment, predisposing, enabling and need variables on personal health choices of adults with intellectual disability., Health, 5, (4), 2013, p749 - 756 Journal Article, 2013 DOI TARA - Full Text

Understanding the similarities and differences in aging with an intellectual disability: Linking Irish general population and intellectual disability datasets in, editor(s)R. Urbano , Using Secondary Datasets to Understand Persons with Developmental Disabilities and their Families , New York, Academic Press, 2013, pp206 - 233, [McCallion, P., Swinburne, J., Burke, E., McGlinchey, E., McCarron, M.] Book Chapter, 2013 DOI

McGlinchey, E., McCallion, P., Burke, E., Carroll, R., McCarron, M, Exploring the Issue of Employment for Adults with an Intellectual Disability in Ireland, Journal of applied research in intellectual disabilities, 26, (4), 2013, p335 - 343 Journal Article, 2013 DOI

Burke, E., McCallion, P., McGlinchey, E., McCarron, M., , The Ageing Perceptions of Older Adults with an Intellectual Disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November 2013, 2013 Conference Paper, 2013

McCarron, M., Swinburne, J., Burke, E., McGlinchey, E., Carroll, R., McCallion, P, Patterns of multimorbidity in an older population of persons with an intellectual disability: results from the intellectual disability supplement to the Irish longitudinal study on aging (IDS-TILDA)., Research in developmental disabilities, 34, (1), 2013, p521 - 527 Journal Article, 2013 DOI TARA - Full Text

McCallion, P., Burke, E., Swinburne, J., McGlinchey, E., Carroll, R., McCarron, M, The influence of environment, predisposing, enabling and need variables on personal health choices of adults with intellectual disability., The Health Well, 4, 2013, p749 - 756 Journal Article, 2013 TARA - Full Text DOI

McGlinchey E, McCallion P, Burke E, Carroll R & McCarron M, Exploring the issue of employment of adults with an intellectual disability in Ireland., JARID, 26, (4), 2013, p335-43 Journal Article, 2013 DOI

Burke, E., McCallion, P., Swinburne, J., Carroll, R., McCarron, M., I'm Not Ready Yet: What people with an Intellectual Disability say about growing older and retirement in Ireland., IASSID World Congress, Halifax, Canada, July, 2012 Meeting Abstract, 2012

McCallion, P., Swinburne, J., Burke, E., McGlinchey,E., Carroll, R., McCarron, M., Health Care Utilisation by Adults with an Intellectual Disability Ageing in Ireland., IASSID World Congress, Halifax, Canada, July, 2012 Meeting Abstract, 2012

McCallion, P., Burke, E., McCarron, M., Hopes for the Future: The impact of caring for a family member with an Intellectual Disability who is ageing., IASSID World Congress, Halifax, Canada, July 2012, 2012 Meeting Abstract, 2012

McCarron, M., Swinburne. J., Burke. E., McGlinchey, E., & McCallion, P, Physical health and multiple morbidity in Irish people with an intellectual disabiltiy as they age., IASSID World Congress, Halifax, Canada, July , 2012 Meeting Abstract, 2012

O'Connell, J., Henman, M., McCarron, M., McCallion, P., Burke, E., O'Dwyer, C., Mulryan, N., Donegan, C., O'Dwyer, M. , Drug Burden Index and Physical Function in Older Adults with Intellectual Disabilities: An Observational Cross-Sectional Study, Bridging the gap: From evidence to improved health from persons with intellectual and developmental disabilities Health SIRG, Belfast Ireland, 2017 Conference Paper,

Non-Peer-Reviewed Publications

Prof Mary McCarron and Dr Eilish Burke, Working wiht people with intellectual disabilities and their families - practical strategies and not just words, Do Nothing About Me Without Me:Public and Patient Involvement Demystified, Durkan Lecture Theatre, Trinity Translational Medicine Institute, Trinity Centre, St. James Hospital, 19th May, 2017, International Clinical Trials Day Symposium Invited Talk, 2017

Burke E., and Keating L., Supporting people with an intellectual disability to be an active participant in their own health; , Frontline, (105), 2017 Journal Article, 2017 URL

Burke, E., McCarron M and McCallion P, Supporting Public and Patient Involvement in Research , Using IDS-TILDA as an example for true patient and public involvement (PPI), EIT Health/ACM SIGCHI e-Health Summer School 2017, Trinity College Dublin, June 2017, 2017 Conference Paper, 2017

McCarron, M., Burke, E, To ensure 'nothing about us without us', Engaged Research: Society& Higher Education Working Together to Address Grand Societal Challenges, Mansion House, Dublin, 13th January, 2017, Irish Research Council & Campus Engage Invited Talk, 2017

Burke, E & O'Donovan, MA , Lessons learnt from Wave 1 and Wave 2 of the Intellectual Disability Supplement to the Irish Longitudinal Study of Ageing - IDS-TILDA. , UCD, School of Psychology, September , 2016 Invited Talk, 2016

McCarron, M., Burke, EA. & O'Dwyer, M. , Findings and Policy Implications of the IDS-TILDA study. An address on ageing and intellectual disabilities to the Joint Oireachtas Committee on Health and Children, Contributed to the preparation of submission documents on Ageing and Intellectual Disability to the Oireachtas Health Committee, 2015, 2015 Oral Presentation, 2015

Burke, EA., McCallion, P. and McCarron M. , Advancing Years, Different Challenges: Wave 2 IDS-TILDA Findings on the ageing of people with an intellectual disability. Dublin: School of Nursing & Midwifery, Trinity College Dublin., Trinity College Dublin, The University of Dublin Trinity College, 2015 Report, 2015

Burke, EA. , 'Investigating osteoporosis among adults with intellectual disability', Innovation Academy , Trinity College Dublin, 2015, - Film production, 2015

McGlinchey, E., McCausland, D., Burke, EA., Carroll, R., O'Donovan, MA., Mulryan, N., Shivers, C., O'Dwyer, M., McCallion P and McCarron, M., Advancing Years, Different Challenges: Wave 2 IDS-TILDA Findings on the ageing of people with an intellectual disability. An Accessible Report, Accessible version, Trinity College Dublin, The University of Dublin Trinity College, 2015 Report, 2015

Burke. EA., McCallion, P. and McCarron, M. , Bone health and people with Intellectual Disability. A Comprehensive Approach to Health and Health Care for People with Intellectual Disabilities as they Age,, IASSIDD Academy on Education, Teaching, and Research, European Congress, University of Vienna, Austria, 2014, International Association for the Scientific Study of Intellectual and Developmental Disabilities Academy Invited Talk, 2014

Burke, EA. , The changing health profile of adults with intellectual disability: Results from Wave 2 IDS-TILDA, National Disability Authority , Dublin, 2014 Invited Talk, 2014

McCarron, M., McGlinchey, E., Burke EA. & McCallion P., 'Scenes from Our Lives ', Trinity College Dublin, 2014, - Film production, 2014

McCarron. M., Swinburne. J., Burke, E., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S., & McCallion. P., Growing Older with an Intellectual Disability in Ireland 2011; First Results from the The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing., 2011 Report, 2011

McCarron, M., Swinburne, J., Burke, EA., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S. and McCallion P. , The Physical and Behavioural Health of Older adults with an Intellectual Disability in Ireland 2011: First results from IDS-TILDA, Irish Nurses and Midwives Organisation Education Day, Dublin, December 2011, 2011 Oral Presentation, 2011

McCarron, M., Swinburne, J., Burke, EA., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S. and McCallion P. , Growing Older with an Intellectual Disability in Ireland, First results from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing -An Accessible Report. , Accessible version, Trinity College Dublin, 2011 Report, 2011

Research Expertise

Projects

  • Title
    • Better Bones Better Health: Development of a risk assessment tool for the prediction of osteopenia and osteoporosis among people with intellectual disability.
  • Summary
    • The prevalence of osteoporosis and osteopenia in older adults with intellectual disability (ID) in Ireland has been established at over 70% irrespective of gender. The common identified risks observed among the general population are also not consistently evident. The aim of this project is to develop an online tool for predicting osteoporosis/osteopenia in people with ID. This project will take the first steps in developing an osteoporosis/osteopenia risk evaluation tool for people with ID that will then support future research on improving bone health care assessment and diagnosis for people with ID. No such tool currently exists.
  • Funding Agency
    • Faculty of Health Sciences TCD
  • Date From
    • March 2018
  • Title
    • End of Life, Glancing Back Thinking Forward
  • Summary
    • Development of a Palliative Care Support hub for people with intellectual disability, their families and carer's/support workers
  • Funding Agency
    • The AIIHPC Palliative Care Research Network
  • Date From
    • Feb 2017
  • Date To
    • June 2017
  • Title
    • Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing
  • Summary
    • Building on the first two waves of the study, the IDS-TILDA study continues to build a picture of the health and wellbeing of older adults with intellectual disability. Identifying the physical and social health determinants that influence peoples lives as they grow older in Ireland.
  • Funding Agency
    • HRB and Department of Health
  • Date From
    • 2015
  • Date To
    • 2018
  • Title
    • 'Scenes from our Lives - Wave 2'
  • Summary
    • This project consisted of a multilevel approach to dissemination, which included the development of a DVD whereby actors with intellectual disability acted out key messages from the findings of Wave 2 IDS-TILDA, the IDS-TILDA team created infographics of the key themes emerging from the data and finally, the team engaged in a roadshow disseminating the results throughout the country to a variety of services and staff.
  • Funding Agency
    • HRB
  • Date From
    • 2015
  • Date To
    • 2016
  • Title
    • Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing
  • Summary
    • For the first time in history, people in Ireland with an intellectual disability (ID) are growing old in considerable numbers. The Intellectual Disability Supplement to Irish Longitudinal Study on Ageing (IDS-TILDA) is designed to better understand the experiences and challenges of adults with an intellectual disability as they age. In its first wave of data collection, IDS-TILDA accumulated a sample of 753 persons aged 40+ with an ID. The sample was drawn randomly from the National Intellectual Disability Database (NIDD) who responded (or carers have responded on their behalf) to questionnaires addressing demographics, health, health utilisation, medication usage, ADL/IADLs, employment/day programming, social participation, social connectedness, life satisfaction, happiness, ageing perceptions, personal choices, sources of income and life-long learning.
  • Funding Agency
    • HRB and Department of Health
  • Date From
    • 2011
  • Date To
    • 2014
  • Title
    • Getting the message to the people that matter
  • Summary
    • IDS-TILDA is a longitudinal study researching ageing in Ireland among people with an intellectual disability aged 40 and over. The first of its kind in Europe, and the only study able to directly compare the ageing of people with intellectual disability with the general ageing population, the study is also uniquely inclusive, from inception to dissemination. To realize this ethos of inclusion the IDS-TILDA team devised a multimedia project entitled 'Getting the Message to the People that Matter; Innovation in Research Dissemination'©. This multimedia approach in which people with ID are both active participants and comprehending recipients of research offers a dissemination mode that enhances understanding of information and increases access, essential elements of inclusion of persons with ID and a means to advance an emerging international framework for online accessibility. A DVD entitled 'Scenes from Our Lives' is just part and the beginning of accessible dissemination efforts and presents the findings of IDS-TILDA in a visual format using short filmed segments using actors with ID that depict specific results. In the next phase of the project the acted scenes will be uploaded to a user friendly multimedia website with text only and visual and auditory enhanced elements to overcome literacy barriers, further advance understanding and encourage interaction among people with ID and their family/carers. A finding of IDS-TILDA was that people with ID as they aged were largely absent from the digital world. The multimedia approach will seek to welcome people with ID to range of media and in the future project specific iPad/android apps and other touchscreen technology will be added to further increase accessibility.
  • Funding Agency
    • IRCHSS
  • Date From
    • Dec 2012
  • Date To
    • Dec 2013
  • Title
    • Shaping the future of the registered nurse intellectual disability
  • Funding Agency
    • Department of Health

Keywords

Ageing; Ageing & Intellectual Disability - Changing Service Needs; Ageing & Intellectual Disability Issues; Ageing, Health and Intellectual Disability ; BONE; Down Syndrome, dementia and ageing; OSTEOPOROSIS

Recognition

Representations

Chair of the Masters in Ageing and ID Curriculum Development Committee 2016

Special Interest Research Group Ageing IASSID 2012

Special Interest Research Group Health IASSID 2013

Member of the Postgraduate Management Committee SNM 2017

Member of the Intellectual Disability Discipline 2016

Awards and Honours

Dean's Research Award 2017 06.03.2017

Winner of the Trinity College Postgraduate of the Year Showcase 2016 March 2016

Winning juried SIRGAIDD Award for best student poster at the Boston roundtable of the IASSIDD special interest group on ageing with an intellectual disability. September 2013

Memberships

Member of the Scientific Advisory Board to The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing 2016 – To date

Member of the 'Healthy Campus Group' 2017 – To date

Member of the Irish Gerontological Society 2014 – To date

Member of the International Osteoporosis Foundation 2014 – To date

Member of the Irish Osteoporosis Society 2013 – To date

Member if the International Association for the Scientific Study of Intellectual and Developmental Disabilities 2012 – To date

Member of the Steering Committee to The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing 2011 – To date