Biography
Éilish Burke RGN RNID BNS MSc.PhD. completed her PhD in March 2016, during her studies she achieved a number of awards including Postgraduate of the year 2016 and was appointed as the Ussher Assistant Professor in Ageing and Intellectual Disability, Trinity College Dublin in September 2016. Éilish originally trained as a general nurse and through her volunteer work with the Special Olympics she developed an interest in intellectual disability (ID). She trained as a Registered Nurse Intellectual Disability and has worked in the field for over 25 years. Éilish completed her Masters in Trinity and joined the IDS-TILDA team as a research assistant in 2010. Éilish served as Project Manager from 2011-2016, whilst continuing to play an integral role in IDS-TILDA she is now Ussher Assistant Professor in Ageing and ID in the School of Nursing and Midwifery with her research based with IDS-TILDA. Her specific area of interest is bone health although she has a broad interest in all health issues that impact on ageing. She has recently been appointed as the Associate Director of the new Trinity Centre for Excellence in Ageing and Intellectual Disability and in Sept. 2018 launch the first research led masters programme in ageing and intellectual disaiblity.
She is a member of the International Association for the Scientific Study of Intellectual and Developmental Disability, as well as the International Osteoporosis Foundation and the Irish Osteoporosis Society. Her related research interests include physical health and well-being, inclusionary methods of healthcare screening and healthcare engagement, accessible health promotion and promoting research involvement of people with ID. She is the Director of a new interdisciplinary master's course in ageing and intellectual disability which launched in 2018. During her research development, she designed and developed an accessible format and approach to engaging people in health assessments. She is a committed teacher and has been involved in education throughout her career. She currently teaches on the undergraduate nursing ID programme and the new ageing health and well being masters programme. Éilish has a number of publications and projects,and has disseminated widely through national and international conferences.
Publications and Further Research Outputs
Peer-Reviewed Publications
Burke, E, A., McCarron, M., McCallion, P., Bowman, S, Building Inclusive Communities: Learning from the world, Involving Older Adults in Research - Lessons from 10 Years of IDS-TILDA, USA, November 2018, 2018
Burke, EA., Walsh, JB., McCallion, P. and McCarron, Engaging adults with intellectual disability (ID) in objective measurements for the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing , SPHeRE Network Conference , RCSI, Dublin, 11th Jan 2018, 2018
Burke, EA., Carroll, R., O'Dwyer, M., Walsh, JB., McCallion, P and McCarron, M., Osteoporosis and People with Down Syndrome: A Preliminary Descriptive Examination of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing Wave 1 Results, Health, 10, (9), 2018, p1233 - 1249
Horan, P., Fleming, S., Cleary., Burke, E., Doyle, C., Byrne, K., Griffiths, G., Keenan, P, 'Sweet Dreams': An Evidence Based Approach to Effective Sleep Hygiene Maintenance for People living with an Intellectual Disability, Learning Disability Practice, 2018
Burke, EA., Carroll, R., O'Dwyer, M., Walsh, JB., McCallion, P. and McCarron M., 'A quantitative examination of the bone health status of older adults with intellectual and developmental disability in Ireland: a cross sectional nationwide study, British Medical Journal, 2018
Overview of the Important Physical Health Concerns in, editor(s)Vee P. Prasher and Matthew P. Janicki , Physical Health of Adults with Intellectual Disabilities, Springer Nature, 2018, [Burke, E.A., O'Dwyer, M., McGlinchey, E., Foran, S., MacGiolla Phadraig, C., Carroll, R., McCallion, P. and McCarron, M]
O'Connell, J., Burke, E., Mulryan, N., O'Dwyer, C., Donegan, C., McCallion, P., McCarron, M., Henman, M., O'Dwyer, M, Drug Burden Index to Define the Burden of Medicines in Older Adults with Intellectual Disabilities: An Observational Cross-Sectional Study , British Journal of Clinical Pharmacology, 2018
Burke, E., McCallion, P., McCarron, M, "Men's Bones Matter Too; Fracture risk and associated osteoporosis among older men with intellectual disability, Health SIRG 2017 , Belfast, 19th June, 2017
O'Connell, J., Henman, M., McCarron, M., McCallion, P., Burke, E., O'Dwyer, C., Mulryan, N., Donegan, C., O'Dwyer, M. , Drug Burden Index and Physical Function in Older Adults with Intellectual Disabilities: An Observational Cross-Sectional Study, Bridging the gap: From evidence to improved health from persons with intellectual and developmental disabilities Health SIRG, Belfast Ireland, 2017, 2017
Burke, E., McCarron, M.,, An exploration of the bone health of older adults with an intellectual disability, 2017 International Summit on Ageing with an Intellectual Disability, 6 Kildare Street, Dublin, 20th September, 2017
Burke, E., McCarron, M.,, Physical health and older adults with intellectual disabilities, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017
Burke, E., McCarron, M, Ageing and the changing needs of people with an intellectual disability, International Occupational Therapy Group from Singapore, St James Hospital, February, 2017
O'Connell J., O'Dwyer, M., Burke, E; Henman, M., McCarron, M., McCallion, P;, Drug Burden Index and Physical Function Measures in Older Adults with Intellectual Disabilities, ESCP International Symposium , Germany, 9th - 11th October, 2017
Burke, E., McCarron, M, IDS-TILDA, An overview from the beginning, Research Study Day, Dublin, January, 2017, St John of God
Burke, E; McCallion, P., Walsh, J.B., McCarron, M., An exploration of the bone health of older adults with an intellectual disability in Ireland, Journal of Intellectual Disability Research, 16, (2), 2017, p99 - 114
McCarron, M., Burke, E, To ensure 'nothing about us without us', Engaged Research: Society& Higher Education Working Together to Address Grand Societal Challenges, Mansion House, Dublin, 13th January, 2017, Irish Research Council & Campus Engage
Caoimhin MacGiolla, Phadraig., McCarron, M, Why do older adults with intellectual disabilities not wear dentures, 23rd iADH Congress in conjunction with SCDA 28th Annual Meeting, Chicago, 16th April, 2016
Burke, EA., McCarron, M.,Walsh, JB., Carroll, R and McCallion, P, Prevalence and predictors of osteoporosis risk among older adults with intellectual disability n Ireland, IASSIDD Congress, Melbourne, Australia, 15th - 19th August, 2016
King, E., Okodogbe, T., Burke, E., McCarron, M., McCallion, P., O'Donovan, MA, Activities of daily living and transition to community living for adults with intellectual disabilities, Scandinavian Journal of Occupational Therapy, 1, (1), 2016, p1 - 7
Burke, E., McCarron, M, Bone health and older adults with intellectual disability., Research Study Day, Dublin, November, 2016, Daughters of Charity
Burke, EA., Walsh, JB., McCallion, P. and McCarron, M., ONE SIZE DOES NOT FIT ALL, MAKING REASONABLE ADJUSTMENT TO FACILITATE THE ENGAGEMENT OF PEOPLE WITH INTELLECTUAL DISABILITY IN OBJECTIVE HEALTH ASSESSMENT., IASSIDD Congress, Melbourne, Australia, , Melbourne, Australia, 15th - 19th August, , 2016
Burke, EA., Carroll, R., Walsh, JB., McCarron, M., McCallion, P,, The Feasibility of Utilising Quantitative Ultrasound as a Method of Objectively Measure in Bone Status among Older Adults with Intellectual Disability., IASSIDD Congress, Melbourne, Australia,, Melbourne Australia, 15th - 19th August,, 2016
Burke, EA., McCarron, M, The IDS-TILDA Study - An overview with focus on speech and language, Masterclass for speech and language master students, School of Speech and Language, Trinity College, 9th October, 2015
Burke, E., McCallion, P., Walsh, JB., McCarron, M, The Bone Status of Adults with Intellectual Disability: Results from the Second Wave of IDs-TILDA, IAGG-ER 8th Conference, Dublin, 23rd April, 2015
Burke, EA., McCallion, P., Walsh, JB., McCarron, M, Examining the bone health of older adults with intellectual disability, Irish Gerontological Society PhD Conference, Education Centre, Our Lady's Hopice, Harolds Cross, Dublin 6, 2015
MacGiolla Phadraig C., McCarron M. , Burke E., Cleary E., McGlinchey E., McCallion P., Nunn., J. , Total tooth loss and complete denture use in older adults with intellectual disabilities in Ireland, Journal of Public Health Dentistry, 75, (2), 2015, p101 - 108
Burke, EA., McCarron, M, The lives and needs of older people with learning disabilities in Ireland, The BILD 2015 International Ageing Well Research and Practice Conference, Aston University, Bermingham, 4th December, 2015
O'Dwyer, M., Belton, A, Burke, E., Mulryan, N., Pekar, J., McCallion, P, McCarron, M., Henman, M, Antipsychotics in older people with ID: Prevalence and associated risks, IAGG-ER 8th Conference, Dublin, 25th April, 2015
Burke, EA., McCarron, M, Unlocking the determinants of ageing and bone health among adults with an intellectual disability, Disability Research Seminar, Dublin, 3rd November, 2015
Burke, EA., McCallion, P., Walsh, JB., McCarron, M, An investigation into the bone health and bone quality among older adults with an intellectual disability in Ireland., Annual Medical Conference, Irish Osteoporosis Society , Trinity College, 31st October, edited by Dublin , 2015
Burke, EA.,, Health, well-being and community participation: IDS-TILDA, Camphill Community National Conference, Kilkenny, July, 2015
Mac Giolla, Phadraig C., Burke, E., McCallion, P., McGlinchey, E., Nunn, J., McCarron, M, Dental attendance among older adults with intellectual disabilities in ireland, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015
Burke, E., McCarron, M., Walsh, JB., McCallion, P, The feasibility of utilising quantitative ultrasound as a method of objectiviely measuring bone status among older adults with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 23rd April, 2015
McCarron M, O'Dwyer M, Burke E, McGlinchey E, McCallion P, Epidemiology of epilepsy in older adults with an intellectual disability in Ireland: associations and service implications., American journal on intellectual and developmental disabilities, 119, (3), 2014, p253-60
MacGiolla Phadraig, C.M.G., Burke, E., Mccallion, P., (...), Nunn, J., Mccarron, M. , Dental attendance among older adults with intellectual disabilities in ireland , Special Care in Dentistry, 34, (6), 2014, p265 - 272
Burke E, McCarron M, Carroll R, McGlinchey E, McCallion P, What it's like to grow older: the aging perceptions of people with an intellectual disability in Ireland., Intellectual and developmental disabilities, 52, (3), 2014, p205-19
Burke, E., McCarron, M., Swinburne, J., McGlinchey, E., Carroll, R., McCallion, P, What it's like to grow older: The ageing perceptions of people with intellectual disability in Ireland. , Journal of Applied Research in Intellectual Disability, 52, (3), 2014, p205 - 219
McCarron, M., Swinburne, J., Burke, E., McGlinchey, E., Carroll, R., McCallion, P, Patterns of multimorbidity in an older population of persons with an intellectual disability: results from the intellectual disability supplement to the Irish longitudinal study on aging (IDS-TILDA)., Research in developmental disabilities, 34, (1), 2013, p521 - 527
McCallion P, Burke E, Swinburne J, McGlinchey E, Carroll R & McCarron M, Influence of environment, predisposing, enabling and need variables on personal health choices of adults with intellectual disability., Health, 5, (4), 2013, p749 - 756
Understanding the similarities and differences in aging with an intellectual disability: Linking Irish general population and intellectual disability datasets in, editor(s)R. Urbano , Using Secondary Datasets to Understand Persons with Developmental Disabilities and their Families , New York, Academic Press, 2013, pp206 - 233, [McCallion, P., Swinburne, J., Burke, E., McGlinchey, E., McCarron, M.]
Burke, E., McCarron, M., McCallion, P. , The Silent Thief of Bone: Developing a baseline picture of the bone health of adults with an intellectual disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013
McGlinchey, E., McCallion, P., Burke, E., Carroll, R., McCarron, M, Exploring the Issue of Employment for Adults with an Intellectual Disability in Ireland, Journal of applied research in intellectual disabilities, 26, (4), 2013, p335 - 343
McGlinchey, E., McCallion, P., Burke, E., McCarron, M., Examining the area of Employment for Adults with an Intellectual Disability, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013
McGlinchey E, McCallion P, Burke E, Carroll R & McCarron M, Exploring the issue of employment of adults with an intellectual disability in Ireland., JARID, 26, (4), 2013, p335-43
Burke, E., McCallion, P., McGlinchey, E., McCarron, M., , The Ageing Perceptions of Older Adults with an Intellectual Disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November 2013, 2013
McCallion, P., Burke, E., Swinburne, J., McGlinchey, E., Carroll, R., McCarron, M, The influence of environment, predisposing, enabling and need variables on personal health choices of adults with intellectual disability., The Health Well, 4, 2013, p749 - 756
McCallion, P., Burke, E., McCarron, M., Hopes for the Future: The impact of caring for a family member with an Intellectual Disability who is ageing., IASSID World Congress, Halifax, Canada, July 2012, 2012
McCallion, P., Swinburne, J., Burke, E., McGlinchey,E., Carroll, R., McCarron, M., Health Care Utilisation by Adults with an Intellectual Disability Ageing in Ireland., IASSID World Congress, Halifax, Canada, July, 2012
Burke, E., McCallion, P., Swinburne, J., Carroll, R., McCarron, M., I'm Not Ready Yet: What people with an Intellectual Disability say about growing older and retirement in Ireland., IASSID World Congress, Halifax, Canada, July, 2012
McCarron, M., Swinburne. J., Burke. E., McGlinchey, E., & McCallion, P, Physical health and multiple morbidity in Irish people with an intellectual disabiltiy as they age., IASSID World Congress, Halifax, Canada, July , 2012
Non-Peer-Reviewed Publications
McCarron M, Sheerin F, Roche L, Ryan A M, Griffiths C, Keenan P, Doody O, D'Eath M, Burke E and McCallion P., Shaping the future of Intellectual Disability Nursing in Ireland., Dublin, Health Services Executive, 2018, p1 - 150
Burke, E., McCarron M and McCallion P, Supporting Public and Patient Involvement in Research , Using IDS-TILDA as an example for true patient and public involvement (PPI), EIT Health/ACM SIGCHI e-Health Summer School 2017, Trinity College Dublin, June 2017, 2017
Burke E., and Keating L., Supporting people with an intellectual disability to be an active participant in their own health; , Frontline, (105), 2017
Prof Mary McCarron and Dr Eilish Burke, Working wiht people with intellectual disabilities and their families - practical strategies and not just words, Do Nothing About Me Without Me:Public and Patient Involvement Demystified, Durkan Lecture Theatre, Trinity Translational Medicine Institute, Trinity Centre, St. James Hospital, 19th May, 2017, International Clinical Trials Day Symposium
Burke, EA., Understanding the bone health of older adults with an intellectual disability, 2017 Summit on Ageing and Intellectual Disability, Trinity College Dublin Ireland, 20th September 2017, 2017
Burke, E., McGlinchey, E., O'Dwyer, M., Foran, S., MacGiolla Phadraig, C., O'Connell,J., Ryan, J., Carroll R. and McCarron, M, Physical Health Prevalence and incidence of chronic health conditions across 10 years IN: Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland Evidence from the First Ten Years of The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA), Trinity College Dublin, 2017, p58 - 85
McDermott, Aoife, A descriptive quantitative study examining the prevalence of constipation in older adults with intellectual disabilities in Ireland, Trinity College Dublin, 2016
Burke, E & O'Donovan, MA , Lessons learnt from Wave 1 and Wave 2 of the Intellectual Disability Supplement to the Irish Longitudinal Study of Ageing - IDS-TILDA. , UCD, School of Psychology, September , 2016
McGlinchey, E., McCausland, D., Burke, EA., Carroll, R., O'Donovan, MA., Mulryan, N., Shivers, C., O'Dwyer, M., McCallion P and McCarron, M., Advancing Years, Different Challenges: Wave 2 IDS-TILDA Findings on the ageing of people with an intellectual disability. An Accessible Report, Accessible version, Trinity College Dublin, The University of Dublin Trinity College, 2015
Burke, EA., McCallion, P. and McCarron M. , Advancing Years, Different Challenges: Wave 2 IDS-TILDA Findings on the ageing of people with an intellectual disability. Dublin: School of Nursing & Midwifery, Trinity College Dublin., Trinity College Dublin, The University of Dublin Trinity College, 2015
McCarron, M., Burke, EA. & O'Dwyer, M. , Findings and Policy Implications of the IDS-TILDA study. An address on ageing and intellectual disabilities to the Joint Oireachtas Committee on Health and Children, Contributed to the preparation of submission documents on Ageing and Intellectual Disability to the Oireachtas Health Committee, 2015, 2015
Burke, EA. , 'Investigating osteoporosis among adults with intellectual disability', Innovation Academy , Trinity College Dublin, 2015, -
McCarron, M., McGlinchey, E., Burke EA. & McCallion P., 'Scenes from Our Lives ', Trinity College Dublin, 2014, -
Burke. EA., McCallion, P. and McCarron, M. , Bone health and people with Intellectual Disability. A Comprehensive Approach to Health and Health Care for People with Intellectual Disabilities as they Age,, IASSIDD Academy on Education, Teaching, and Research, European Congress, University of Vienna, Austria, 2014, International Association for the Scientific Study of Intellectual and Developmental Disabilities Academy
Burke, EA. , The changing health profile of adults with intellectual disability: Results from Wave 2 IDS-TILDA, National Disability Authority , Dublin, 2014
McCarron, M., Swinburne, J., Burke, EA., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S. and McCallion P. , Growing Older with an Intellectual Disability in Ireland, First results from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing -An Accessible Report. , Accessible version, Trinity College Dublin, 2011
McCarron, M., Swinburne, J., Burke, EA., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S. and McCallion P. , The Physical and Behavioural Health of Older adults with an Intellectual Disability in Ireland 2011: First results from IDS-TILDA, Irish Nurses and Midwives Organisation Education Day, Dublin, December 2011, 2011
McCarron. M., Swinburne. J., Burke, E., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S., & McCallion. P., Growing Older with an Intellectual Disability in Ireland 2011; First Results from the The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing., 2011